The Patient Community Responds

"I just wanted to let you know I understand to an extent what you are going through. I am a nanny for 3 year old twin boys, one of which has left heart syndrome. He had his final operation in san francisco just this month and after returning home he has been re-admitted... Recently the while changing his sheets his mom noticed sores all over his back.....why didn't the nurses think to check that out...it's really upsetting. So quality care is something that needs to be addressed. These kids need a voice and you are good people to seeing that they have one. Take care.."